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Adaptive Sport Equipment Opens New Doors

Hello All,

This is another old post from our previous website. We will begin posting new content on a regular basis starting this week. However, since we wanted to share some older material today. Enjoy!

The month of October is very exciting this year!  That is because we have begun the preliminary wheelchair basketball games leading up the main event, our 3rd Annual Abilities Tip-Off on Nov. 16th.  On Oct. 5th we gathered at Wilkes University for our first preliminary event, and on Oct. 19th we will be holding our next event at Misericordia University.  We will also be holding prelims on Nov. 1 at Lackawanna College, and on Nov. 15 at the University of Scranton.

One of our goals for this webpage has always been to celebrate every individual’s abilities.  There is so much that can be done if each of us focuses on our abilities even in a small way.  By doing this we can build up positive attitudes and become better each day.  Sometimes there are obstacles that must be overcome in order to participate in activities in a healthy way.  It is one goal of our group is to make the general public aware of obstacles which individuals who have spinal cord injuries, or use wheelchairs, may face.  In this way, our Annual Abilities Tip-Off brings a fun event to the public and allows us to spread awareness in our community, celebrating what we can do.

In this post, I would like to begin our focus on ways in which adaptive sports equipment has helped open new doors for individuals with disAbilities.  The majority of adaptive sports came into existence after WWII, when returning injured veterans began looking for ways to participate in more activities.  However, one of the most popular adaptive sports, wheelchair basketball, can trace its roots to 1944, and the work of Ludwig Guttmann.

Ludwigg Guttmann, a pioneer for adaptive sports.

Ludwig Guttmann

Guttman was a Jewish doctor who fled Nazi Germany, for Britain, just before the start of WWII.  He was a neurosurgeon by trade, but in 1944, because of experience that he had with spinal cord injuries, the British government asked him to establish the National Spinal Cord Injuries Center at Stoke Mandeville Hospital in Buckinghamshire.  A major part of Dr. Guttmann’s philosophy was that sport was a major therapy method for those veterans returning from the war.  Not only did sports help these individuals build up physical strength, but also, they were able to maintain self-respect.  Though Dr. Guttmann’s adaptations for basketball were a little different from how the sport is played today, it is important to note his influence on the American version of the game.  In addition, Dr. Guttmann was the first organizer of the Stoke Mandeville Games, which was held on the same day as the start of the 1948 Summer Olympics in London.  These games continued every year after, and are now known as the Paralympic Games.Diagram of wheelchair parts.

So what about the equipment for basketball?  Well, even though this was one of the earliest games adapted, it was played using regular wheelchairs for quite awhile.  Usually, a sport must be rather popular before specialized equipment is created for it, and it wasn’t until the 1980’s that wheelchair basketball athletes, alongside wheelchair manufacturers, began developing lightweight chairs that are quick, durable, and can turn on the spot.  Now they come with many additional fixtures, and are made with sets of three of four wheels.

Though wheelchair basketball has become an iconic activity in the US, there are other adaptive sports that are beginning to hold there own.  Join us next time for a look at our next sport.  We will leave it a surprise… 🙂

 

Roll on Capitol Hill 2015

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Hello All,

The fourth annual Roll on Capitol Hill (ROCH) and Advocacy Conference was held this year from June 7th to June 10th, and for the second year in a row members of the I AM group attended.  Recently, I had a chance to speak with Holly Petro, and Mike Pellicano about their experience in Washington, D.C.  The ROCH is an event sponsored by United Spinal with the goal of addressing issues and policies that impact the health, independence, and quality of life of individuals living with spinal cord injuries or disorders.  It took on special importance this year, with the celebration of the 25th Anniversary of the ADA.

The White House

The White House

This four day event calls upon attendees to advocate for the issues that are most currently developing on Capitol Hill.  Each day of the event had something new in store.  While the first day was set aside for arrivals, followed by a welcome reception, the next three days were full of action.  Holly and Mike, along with members of their families and other attendees, spent Monday in a classroom-like setting where they learned about bills currently in legislation and about how to advocate successfully for these issues.  In groups based on state districts, some of the issues that were covered included separate recognition for complex rehab technology under Medicare, the Congressional Bipartisan Disabilities Caucus, the Safe Streets Act of 2015, and access to safe and effective biologic and biosimilar medicines.

On Tuesday, primed with their new advocacy training, Holly and Mike participated in three Capitol Hill Meetings each.  They were each paired with another person from their district, or at least from PA, and left to visit offices throughout D.C.  Essentially, the goal was to meet with Congressional representatives, or in many cases their staff, and to inform them of the importance of each of the bills or topics on the agenda.  The hope is that the advocates make an impression on the representatives so that they will offer their support for the bills in legislation.  This can be a challenging thing to accomplish.

Holly Petro with Paul Bowers and Bryan McCormick, Pittsburgh.

Holly Petro with Paul Bowers and Bryan McCormick, Pittsburgh.

“I was nervous about remembering everything.  I thought, ‘Am I going to be memorable enough,” said Holly.  The nice thing about the ROCH, however, is that no one had to go it alone.  And so, paired with the President of the Pittsburgh Chapter of United Spinal, and later with a representative from California, Holly made it through with a new perspective in the end.  “The whole process was impactful, interesting, and educational, and it made me more motivated,” said Holly.  For her, “it was a spark” and it “helped me feel that even if I could just help one person it would make a difference.”

For Mike Pellicano, the ROCH took his passion for advocacy to a new level.  Mike is someone who is interested in many of these issues in Pennsylvania, but being in Capitol Hill allowed him to explore these issues on a national level.  Also, Mike was able to meet other advocates who are just as passionate.  One such man spent several years rallying for state-funded grants for spinal cord research in Minnesota.  “It was great to meet so many interesting people, all with different levels of injuries, and from places all over the United States,” said Mike.

Meeting with Senator Toomey's Staff Member Brad Grantz along with Madonna Long, fellow advocate for United Spinal Assn. — with Michael Pellicano.

Meeting with Senator Toomey’s Staff Member Brad Grantz along with Madonna Long, fellow advocate for United Spinal Assn. — with Michael Pellicano.

When all was said and done, Tuesday was all about the representative’s views on the various issues.  “You should know where they stand,” said Mike.  In talking with Holly and Mike they assured me that most of the staff they met with were very nice.  “I was a little surprised and disappointed that we only got to meet with staffers, and not representatives, but overall it was a good experience,” said Holly.

Later on Tuesday, a Congressional Awards Reception was held in order to honor one Senator and two House Representatives.  Rep. Tammy Duckworth (IL) received the 2015 Disability Rights Champion Award for her role in expanding the rights of veterans, veterans with disabilities, and the broader disability community.  Rep. Rob Wittman (VA) received the 2015 Vets First Congressional Bronze Star Award for his efforts to increase opportunities for veterans living with disabilities and to help them reintegrate into their communities.  And, finally, Senator Patty Murray (WA) was presented with the 2015 Outstanding Congressional Leadership Award for her extensive leadership and vocal support of disability issues.  United Spinal also honored consumer advocate Willis Washington who received the 2015 Advocate of the Year Award for his years of effective advocacy on behalf of people with disabilities, not only in his own state of Oklahoma, but across the country.

Overall, the 2015 Roll on Capitol Hill was a successful gathering.  Both Holly, and Mike say that they would love to go again.

I’d like to thank Mike and Holly for chatting with me about the event.  In addition, I thought it would be nice to post a link to some of the bills that were being discussed.  Feel free to click the links below, and read up on the issues that are up legislation.  At each link there is a list of sponsors of the bill, so you can check and see if your local representatives have added their names yet.  As Mike said, “It’s important to know where they stand.”   Lastly, we would like to encourage you to do more research on these and other issues.  It is always good to be informed, and to know what your representatives are doing for you.

H.R. 1516- Ensuring Access to Quality Complex Rehabilitation Technology

H.R. 2071- Safe Streets Act of 2015

Disabilities Caucus

by: Peter Salva

 

 

A History of the Disabilities Rights Movement

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Our feature from September 2014:

September is National Spinal Cord Injury Awareness Month, and throughout the month we would like to take a look at the history of disabilities awareness, and public access in the US.  It is easy to focus on the Americans with Disabilities Act (ADA) as the defining moment in the history of disabilities rights.  This is because the act is such a radical change from previous government policy, and provides the written presentation of basic civil rights that have not always been provided to individuals with disabilities.  Like the well known civil rights movement of the 1960’s, the Disabilities Rights Movement was a long arduous process marked by many shameful moments in US history.  Yet, there were also many heroes, those who pushed for equal rights and lobbied for advancements in the treatment of individuals with disabilities.  Some of these people have been forgotten throughout history, but we would like to celebrate them.  In future posts this month we will look at the ADA and its impact on the US today, but it is important to first take a look back into the history that led to the passing of the ADA.

“Study the past if you would define the future”. – Confucius

1869-Wheelchair-Patent

The dated patent for an “Invalid Chair”

The first significant date in our discussion is Feb 16th, 1869 when A.P. Blunt, and J.S. Smith registered the first US patent of what we now call the wheelchair.  As you can see from the image here, their terminology is a clear mark of the attitude held toward disabilities in the time that they lived in. Yet, the invention of such a chair was a great leap forward for individuals with physical disabilities.  Later, in 1909, the first folding wheelchairs began to be introduced for people with mobility disabilities.  Additionally, in 1937, Herbert A. Everest, and Harry C. Jennings patented a design for a folding wheelchair with an x-frame which could be packed into a car trunk.  These innovations in wheelchair design, along with the eventual development of the electric wheelchair allowed individuals with spinal cord injuries, and others, to have more mobility in their lives.

In 1933, Franklin Delano Roosevelt became the first seriously physically disabled person to be elected as President of the United States.  It was during his first term in office that The League of the Physically Handicapped was formed in New York City.  The purpose of this organization was to protest discrimination against people with disabilities by federal relief programs.  The group was one of the first of its kind to organize sit-ins, picket lines, and demonstrations, and to travel to Washington, D.C., in order to protest and meet with officials of the Roosevelt administration.

Paul Strachan, a labor union organizer, founded the American Federation of the Physically Handicapped in 1940.  This was the nations first cross-disability, national political organization, and it pushed for an end to job discrimination, lobbying for the passage of legislation which called for a National Employ the Handicapped Week, and other initiatives.  Later, in 1952, the President’s Committee on National Employ the Physically Handicapped Week became the President’s Committee on Employment of the Physically Handicapped, a permanent organization reporting to the President and Congress.

Opening Ceremonies of the 1960 Paralympic Games

Opening Ceremonies of the 1960 Paralympic Games

Following the rise in veterans who were returning injured after WWII, the sport of wheelchair basketball arose as a way for veterans to release much pent up energy.  In 1949 the first Annual Wheelchair Basketball Tournament was held in Galesburg, Illinois.  Wheelchair basketball, and other sports, became an important part of disability lifestyle and culture over the next several decades.  The first National Wheelchair Games in the United States were held at Adelphi College in Garden City, New York in 1957, and the first Paralympic Games were held in Rome, Italy in 1960.

Throughout the fifties, and into the sixties the African American Civil Rights Movement was also raging on.  There were two primary successes of this movement which relate to the Disabilities Rights Movement directly.  The 1954 court decision of Brown vs. The Board of Education, ruled that separate schools for black and white children are inherently unequal and unconstitutional.  This ruling served as the inspiration for the Disabilities Rights Movement later on.  The second success I’m referring to is the 1964 Civil Rights Act, which outlawed discrimination on the basis of race in public accommodations and employment, as well as in federally assisted programs.  This became a model for subsequent disability rights legislation.

The 1960’s were years of great change in our country, and this was true of our movement as well.  There were several key events which affected a new focus on public access.  In 1961, the American National Standards Institute, Inc. (ANSI) published American Standard Specifications for Making Buildings Accessible to, and Usable by, the Physically Handicapped.  This landmark document became the basis for all subsequent architectural access codes.  Following this, The Architectural Barriers Act was passed in 1968.  This act is generally considered to be the first ever federal disability rights legislation, and it mandated that federally constructed buildings and facilities be accessible to people with physical disabilities.

Protesting Inaccessible Buses in Denver

Protesting Inaccessible Buses in Denver

The Disabilities Rights Movement enjoyed a series of successes in the 1970’s but these years also came with great struggle for public access.  In 1970, Congress passed the Urban Mass Transportation Assistance Act, declaring it a “national policy that elderly and handicapped persons have the same right as other persons to utilize mass transportation facilities and services.”  However, this act had little success because it lacked any provision of enforcement.  Because of this, many sources of public transportation did not heed the act.  In 1972, the Paralyzed Veterans of America, the National Paraplegia Foundation, and Richard Heddinger filed suit to force the Washington Metropolitan Area Transit Authority to incorporate access into their design for a new, multibillion-dollar subway system in Washington, D.C.  Their eventual victory became a landmark in the struggle for accessible public mass transit.  Still others fought for the right to public transportation throughout the decade.  In 1976, The Transbus group, made up of Disabled in Action of Pennsylvania, the American Coalition of Cerebral Palsy Associations, and others, and represented by the Public Interest Law Center of Philadelphia, filed suit (Disabled in Action of Pennsylvania, Inc. v. Coleman) to require that all buses purchased by public transit authorities receiving federal funds meet Transbus specifications, making them wheelchair accessible.  Also, in 1978, disability rights activists in Denver staged a sit-in demonstration, blocking several Denver Regional Transit Authority buses, to protest the complete inaccessibility of that city’s mass transit system. This demonstration was the first action in a year long civil disobedience campaign to force the Denver Transit Authority to purchase wheelchair lift-equipped buses.

Although the 70’s were certainly a struggle, there were some major successes as well.  1972 saw the founding of The Center for Independent Living (CIL) in Berkeley, California.   Generally recognized as the world’s first independent living center, the CIL sparked the worldwide independent living movement.  Later, when Edward Robinson became the Director of the California Department of Rehabilitation, in 1975, he moved to establish nine independent living centers across that state, based on the model of the original Center for Independent Living in Berkeley. The success of these centers demonstrated that independent living can be replicated and eventually resulted in the founding of hundreds of independent living centers all over the world.

Perhaps the biggest success of the decade was when the Rehabilitation Act of 1973 was passed.  For the first time this act confronted discrimination against people with disabilities.  Section 504 prohibits programs receiving federal funds from discriminating against “otherwise qualified handicapped” individuals and sparks the formation of “504 workshops” and numerous grassroots organizations.  Disability rights activism seized on the act as a powerful tool and made the signing of regulations to implement Section 504 a top priority. Litigation which arose out of Section 504 generated such central disability rights concepts as “reasonable modification,” “reasonable accommodation,” and “undue burden,” which formed the framework for subsequent federal law, especially the Americans with Disabilities Act of 1990.

Yet, after all of the successes of the 70’s, the early 1980’s brought about harsh changes for individuals with disabilities.  From 1981 to 1983, the newly elected Reagan Administration threatened to amend or revoke regulations implementing Section 504 of the Rehabilitation Act of 1973 and the Education for All Handicapped Children Act of 1975.  Disability rights advocates, led by Patrisha Wright at the Disability Rights Education and Defense Fund (DREDF) and Evan Kemp, Jr. at the Disability Rights Center, responded with an intensive lobbying effort and a grassroots campaign that generated more than 40,000 cards and letters. After three years, the Reagan Administration abandoned its attempts to revoke or amend the regulations.  However, during these years the Reagan Administration also terminated the Social Security benefits of hundreds of thousands of disabled recipients.  Advocates said that these terminations were in an effort to reduce the federal budget and often didn’t reflect any improvement in the condition of those being terminated.  A variety of groups sprang up to fight these terminations.  As a result of this termination several disabled people, in despair over the loss of benefits, committed suicide.

In the final years leading up to the passage of ADA in 1990, several activists called for changes to existing legislation.  In Denver (again) in 1983, American Disabled for Accessible Public Transit (ADAPT) was organized at the Atlantis Community Headquarters.  For the next seven years ADAPT conducted a civil disobedience campaign against the American Public Transit Association (APTA) and various local public transit authorities to protest the lack of accessible public transportation.  Also in 1983, The National Council on the Handicapped issued a call for Congress to “act forthwith to include persons with disabilities in the Civil Rights Act of 1964 and other civil and voting rights legislation and regulations.” In 1986, The Air Carrier Access Act was passed, prohibiting airlines from refusing to serve people simply because they are disabled, and from charging them more for airfare than non-disabled travelers.  Also in 1986, The National Council on the Handicapped issued Toward Independence, a report outlining the legal status of Americans with disabilities, documenting the existence of discrimination and citing the need for federal civil rights legislation (what was eventually passed as the Americans with Disabilities Act of 1990).  In 1989, the original version of the American with Disabilities Act, was redrafted and reintroduced.  Disability organizations across the country advocated on its behalf with Patrisha Wright as “general” and Marilyn Golden, Liz Savage, Justin Dart Jr., and Elizabeth Boggs as principal coordinators of this effort.

In 1990, the Wheels of Justice campaign in Washington, D.C., organized by ADAPT, brought hundreds of disabled people to the nation’s capital in support of the ADA.  ADAPT activists occupied the Capitol rotunda, and were arrested when they refused to leave.

Finally, The Americans with Disabilities Act was signed by President George Bush on July 26th in a ceremony on the White House lawn witnessed by thousands of disability rights activists.  The law was and is the most sweeping disability rights legislation in history, for the first time bringing full legal citizenship to Americans with disabilities.  It mandates that local, state, and federal governments and programs be accessible, that businesses with more than 15 employees make “reasonable accommodations” for disabled workers, that public accommodations such as restaurants and stores make “reasonable modifications” to ensure access for disabled members of the public. The act also mandates access in public transportation, communication, and in other areas of public life.

I hope that this has been an eye opening look at the struggles, set-backs, and successes that have occurred throughout the history of the Disabilities Rights Movement.  However groundbreaking ADA is, it is important to remember the history that led up to its signing.

Thank you for reading, and please continue to follow us on Facebook and Twitter throughout the month of September to learn about our upcoming events and to see what fun things we are up to.

The 1990 Signing of ADA

The 1990 Signing of ADA

(Sources: Disability Rights Movement Timeline, The History of the ADA )

A History of Wheelchair Basketball

This is another throwback.  This time we take you back to 2013, when we were preparing for our 2nd Annual Abilities Tip-Off:

1st-Annual-Tip-Off-600x279

 

In keeping with the theme of our upcoming event, the Second Annual Abilities Tip Off, we thought it would be cool to discuss the history of wheelchair basketball.  Basketball is one of the most well-developed sports for wheelchair users in the United States, and with good reason.  It has been played for over 60 years.  Here’s a look at the story:

At the end of WWII, many veterans returning from the fronts in Europe were left paralyzed, or confined to wheelchairs as a result of injuries that they sustained.  Many where left frustrated, lacking an outlet for pent-up energy.

What better way to release this energy than to participate in sports?  Many veterans began to play pool, ping-pong, and catch.  Soon participation extended to bowling, swimming, volleyball, water-polo, softball, touch football, and basketball.

In 1946, the California Chapter of Paralyzed Veterans of America played the first match of wheelchair basketball.  Two weeks later the New England Chapter held a match.  Before long, wheelchair basketball spread across the nation to VA hospitals in Boston, Chicago, Memphis, Richmond and New York. The sport eventually spread across the border to Canada and across the ocean to England.

By 1948 there were six teams in the United States, all members of the PVA and all functioning from VA hospitals.

The first wheelchair basketball team outside of a VA hospital was the Kansas City Wheelchair Bulldozers.

NWBA:

In April of 1949, a group of University of Illinois students, working under the inspired and tireless efforts of Tim Nugent, Director of Rehabilitation, formed the first National Wheelchair Basketball Tournament. That was the beginning of the sport as we know it today.  Earlier wheelchair tournaments, held by the PVA, were only open to paraplegic or spinal cord injured veterans.  The newer NWB Tournament was more inclusive and allowed for the participation of civilians with injuries.

At first, the organization only included men, but in 1974 women began to be included in tournaments and regular game-play on men’s teams, and later in a women’s division.

And the organization continues to push forward.  In the fall of 1991, the Congress of USA Basketball voted to admit the National Wheelchair Basketball Association (NWBA) as an active member, following eleven years as an Associate Member. Appointed to the Board of Directors was the NWBA Commissioner, Stan Labanowich. The action represented a significant advance in the integration of the sport into the national governing body.

Rules of the Game:

The rules of wheelchair basketball are very similar to the basic rules of basketball.  Here are the main points:

  • The court is the same size, the basket is at the same height, and the scoring is identical: two points for a regular shot from open play, one point for each successful free throw and three points for a shot from behind the three point line.
  • Players move the ball around the court by passing or dribbling, and are required to throw or bounce the ball after every two pushes of the wheels on their chairs to avoid being penalised for travelling.
  • There are 12 players in each team, with no more than five on court.
  • Games last for 40 minutes, split into four 10-minute quarters. The clock stops for every break in play and teams can call time-outs which last one minute.

So there you have it.  A quick look at a sport that is fast, fun to play, and entertaining to watch.

*Some information for this post was cited from www.nwba.org. Click this link for more information.

Showcasing Individual Abilities

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This is a throwback to the first post we made on our old website.  It is fitting that we post it again, as our new website is officially up and running.  Enjoy!

Today we are beginning a new journey, and we would like to kick start this website by discussing the topic of abilities.

Every individual has a unique set of abilities. The word ability refers to being able to do something, whether a natural aptitude or an acquired proficiency which may change as we go through life.  Being different on a physical level does not negate this fact.

Unfortunately, sometimes it seems that people tend to focus on the disabilities of individuals.  However, we believe that it is more important to focus on people overcoming obstacles, and capitalizing on whatever areas they can.  We agree with world record holder Robert M. Hensel when he says, “I choose not to place ‘DIS’ in my ability.”

Robert HenselHensel himself, born with the birth defect Spina bifida, is a prime example of overcoming obstacles.  In addition to being a Pushcart Prize Nominee, an Olympic torch carrier, and a significant global advocate for the rights and treatment of individuals with disabilities, he is also a Guinness Book and Ripley’s world record holder. In October 2003, he completed a 6.178 mile long wheelie in his chair.  Hensel’s efforts show us that there is no limit to the possibilities that individuals have.

It is true that each individual has a different capacity depending on what activity or ability we think about.  However, it is our philosophy that with support and nourishment there is no limit to our development as individuals.  In the vein of accomplishments there have been many individuals who have overcome great obstacles.  Beethoven continued composing music, writing what many consider his best piece (the 9th Symphony), after he developed deafness.  Trischa Zorn, who has been blind since birth, is considered to be the most successful Paralympic athlete of all time.  Swimming from the 1980 games in Arnhem, to the 1996 games in Atlanta, she collected 55 medals, including 41 gold. Lisa Fittipaldi, a painter and author, learned how to paint after she lost her vision, and then she wrote a book about her experiences.  She used painting as a means to find her place in the world after losing her sight.  In addition to her inspiring use of color, she is well known for knowing which color she used only by feeling the texture of the paint.

Another individual, who became a quadriplegic after being thrown from a horse during an equestrian competition, went on to lobby on behalf of individuals with spinal cord injuries, and for stem cell research.  He was Christopher Reeve.  In addition, he co-founded the Reeve-Irvine Research Center, and founded the Christopher Reeve Foundation, which is dedicated to finding treatments and cures for paralysis, and also works to improve the quality of life for people living with disabilities.  And, famously, Franklin D. Roosevelt did not let Polio keep him from becoming the President of the United States.

The stories of these individuals are just a handful of examples to inspire us to strive for higher ground in our lives.  Each of us can live a fulfilling life if we work together, supporting and inspiring each other all of the way.

And so, in addition to being a source of information for the I AM organization, we hope that this web site will be an epicenter of inspiration and a celebration of abilities.

 

“I have a disability yes that’s true, but all that really means is I may have to take a slightly different path than you.”   -Robert M. Hensel